The music superstar, whose best-known hits include My Heart Will Go On, Think Twice and It’s All Coming Back To Me Now, revealed her diagnosis in December 2022 as she cancelled her Courage World Tour. In a teaser clip of a new Today interview set to air on NBC in the US, Dion told presenter Hoda Kotb that living with the condition was “like somebody’s strangling you”. She’s ready now.
I Am: Celine Dion, a new documentary, premieres on Prime Video June 25. – Team CelineElle est maintenant prête à vous raconter son histoire. Je suis : Céline Dion, un nouveau documentaire, disponible dès le 25 juin sur Prime Video.
– Team Céline ...
— Celine Dion (@celinedion) “It’s like somebody’s pushing your larynx, pharynx, this way,” she said, using her fingers to press inwards on her throat. Stiff person syndrome is a rare neurological disorder that causes progressive muscular stiffness, which can cause spasms that can be “abdominal, can be in the spine, can be in the ribs”, Dion said. “It feels like if I point my feet, it will stay in (that position), or if I cook — because I love to cook — my fingers, my hands will get in position,” she said.
“It’s cramping, but it’s like in a position of like you cannot unlock them.” The 56-year-old revealed the condition had caused “broken ribs at one point”. “Sometimes, when it’s very severe, it can break some ribs,” the singer said.
Dion has documented her health battle in a new Prime Vi.
