Woman, 27, told she can't have surgery as her conditions are too rare

A woman who has two heart conditions has been told by surgeons she cannot have the life-changing operation she needs because the disorders are too rare. Megan Hetherington, 27, has antiphospholipid syndrome (APS), a rare blood clotting syndrome, and tricuspid stenosis, which means a valve in her heart is narrowed. She desperately needs surgery to replace her narrow tricuspid valve with an animal's one.

But she says doctors have refused to do it because of her condition and told her to 'live every day like it's her last'. Undeterred, she sought out a second opinion and found a different doctor who is happy to take the risk. However, the NHS waiting list for the operation is 12 to 18 months long - time she doesn't think she has - or she can pay £50,000 to have it done privately.

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