, /PRNewswire/ -- The ALS Association commends the for its groundbreaking new report on amyotrophic lateral sclerosis (ALS). . This significant milestone was driven by ALS advocates and the , including securing in Congressional funding for the study.
"This new report is hugely important for the future of the fight against ALS," said Calaneet Balas, president and CEO of the ALS Association. "We still need to review and discuss each of the individual recommendations in the report, but taken as a whole, it's clear that there needs to be a significant investment in ALS research and an overhaul of how ALS care is delivered and paid for. Our community needs to unite around the best recommendations found in the report and push policymakers and payers to take immediate action on them.
" At any one time, at least 30,000 people in the U.S. are living with amyotrophic lateral sclerosis (ALS), a rapidly progressive, fatal neurological disease.
For unknown reasons, veterans are more likely to develop ALS than non-veterans. In 2022, Congress directed the National Institutes of Health to commission a National Academies committee to recommend key actions public, private, and nonprofit sectors should take to make ALS a livable disease in the next 10 years. These guidelines will inform policy decisions and drive strategic priorities, bringing much-needed hope and support to the ALS community.
The ALS Association played a pivotal role in this initiative, contributing recommendations, participati.