Celine Dion is opening up about her life-altering neurological disorder ahead of the release of her documentary, “I Am: Celine Dion.” The film, set to premiere June 25 on Prime Video, details the Quebec pop superstar’s struggle with stiff person syndrome, a progressive condition that causes muscle rigidity and painful spasms. The 56-year-old singer revealed her diagnosis in December 2022, saying the rare illness prevented her from performing.
All of her tour dates were cancelled in the months that followed. She’s returned to the spotlight in recent weeks to talk about her efforts to return to the stage. Here’s a look at what’s been shared so far.
Her twin sons have ‘panic buttons’ at home in case of emergencies Dion says her 13-year-old twin sons, Nelson and Eddy, practice “crisis” drills at home, and there are “panic buttons” in the house in case of emergencies. When she has an episode, she experiences intense physical pain and her body becomes so rigid that she may need help from her sons, she told People in a cover story published Wednesday. To ensure the boys are prepared, Dion and her physical therapist practice a “crisis” scenario every couple of months.
“We have panic buttons in the house and they know how to put me on my side,” she said. She took near-lethal doses of Valium to power through performances Dion says symptoms of her illness had persisted for years and, at one point, she was taking near-fatal doses of Valium in order to get .