Big Ed Brown from 90 Day Fiancé is used to hearing hurtful remarks about his appearance . But he doesn’t let the negativity get him down, he says. Big Ed’s short neck is caused by Klippel-Feil syndrome Ed, 59, has a rare congenital condition called Klippel-Feil syndrome that causes some of the vertebrae in the neck to fuse together.
As a result, Ed has a short neck and a relatively large rib cage. He wasn’t diagnosed with the condition until his teens, but his appearance has been drawing attention since he was a child, he explained in a recent interview with Today.com .
“Since I was a young child, young adults and kids especially, they would always stare at me. They just have always found me kind of interesting. And I think it was due to my physical characteristics,” he said.
Klippel-Feil syndrome occurs in about 1 out of every 40,000-42,000 births, according to the Cleveland Clinic . Doctors don’t know what causes it. Treatments can include physical therapy and medications to address symptoms such as pain and limited mobility.
Some people may require surgery. The ‘ 90 Day Fiancé’ star was bullied as a child because of his appearance Growing up, Ed endured bullying because of his appearance. “They would call me ‘neckless’ and ‘no neck’ and ‘no neck Ed’ and everything under the sun, and it was very hurtful,” he said.
Some 90 Day viewers have hurled similar insults at him on social media since he joined the TLC franchise in 2020. But he’s d.