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Inspired by patient feedback, and designed alongside local service users, its focus is on living well and supporting the best quality of life – and Helen McGarvey was one of the service users whose input steered the project. The Portstewart woman said: “It’s really important that patients’ views are considered. Patients see things that staff don’t see.

Advertisement Advertisement Did you know with an ad-lite subscription to NorthernIrelandWorld, you get 70% fewer ads while viewing the news that matters to you. "We understand how we like to be spoken to and we are the experts of our own condition. So if we can contribute to resources like this it makes it a really rich resource for other people to use.



” The series of videos are all led by healthcare professionals who provide a wide range of practical guidance and advice so people feel better equipped and have greater confidence around managing their wellbeing. Alison Craig, the Northern Trust’s Macmillan Palliative Care Service Improvement Facilitator, said: “The idea for the toolkit came from one of our patients who told us that she could not find resources that really met her needs when she was diagnosed with advanced cancer. We met with her and others in this situation and they helped us create this resource.

“While a palliative diagnosis isn’t curable, people can live with their condition for years and continue to receive treatment. It’s important we support them so that they can live as well as possi.

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