A MUM-OF-ONE has told of her rare condition that caused her nose to collapse and left her needing glass tubes inserted into her eyes. Amanda Kenvyn, 33, has granulomatosis with polyangiitis ( GPA ), which causes inflammation of the blood vessels in your nose, sinuses, lungs, throat and kidneys. She started showing symptoms when she was heavily pregnant and still had them after she gave birth, but doctors told her it was normal and she would feel better.
Eventually, Amanda, from Lincolnshire, was diagnosed with GPA and since been forced to have glass tubes in her eyes to try and stop infections. She also has surgery on her windpipe every six months, which she "hates" but knows she has to have it as "there's nothing else that can be done." Amanda said: "I've had to have Lester Jones glass tubes inserted into both of my eyes to try and stop infections.
"My windpipe is more narrow, and I'm having to have surgery every six months to re-open it. "I know when I need it because I get really breathless, and I can't sing a song, and I get really breathless. "I hate it, but nothing else can be done for me.
" Amanda started with symptoms, including headaches , joint pain and a large abscess on her breast, when she was pregnant with her son Toby, who is now two. She was reassured by doctors her symptoms would disappear after she gave birth, but she began suffering with more headaches and sinus pain after he was born . The admin assistant was then unable to lift Toby out of his cot because .
