I have the same disease as Celine Dion - the one in a million stiff person syndrome - this is the horrifying reality READ MORE: Celine Dion shares harrowing footage of herself suffering seizure By Luke Andrews Senior Health Reporter For Dailymail.Com Published: 16:59, 9 July 2024 | Updated: 17:09, 9 July 2024 e-mail 1 View comments Last month, musical legend Celine Dion gave fans a heartbreaking glimpse into her life with a one-in-a-million condition in her revealing documentary, I Am: Celine Dion. Viewers were moved by disturbing scenes of her agonizing seizures that leave her frozen for up an hour — a symptom of the incurable Stiff Person Syndrome, which Dion revealed she was suffering in December 2022.
The condition, triggered by the immune system attacking nerves, causes painful muscle spasms, seizures and leaves sufferers struggling to move because of pain. Now, two patients have been inspired to share their own experience with the condition, describing how it almost drove them to suicide and left them barely able to move for days on end. Carrie Robinette, 45, from San Diego (left), described how SPS has left her struggling with seizures that can last up to an hour.
Corwyn Wilkey, 44, and from Alaska, said the condition led to the breakdown of his marriage Carrie Robinette, 45, from San Diego in California , revealed she had been sick for years before doctors finally diagnosed her condition — and is now mostly stuck at home unable to move further than 50 feet without.
