The event took place on Saturday 15 June 2024 at the Village Hotel Leeds South and welcomed more than 60 individuals and families affected by Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). At the event, attendees heard updates from the charity as well as information from healthcare professionals working in the field. In addition, attendees had the opportunity to take part in a seated dance class with the English National Ballet and build connections with each other.
Advertisement Advertisement Did you know with a Digital Subscription to Yorkshire Evening Post, you can get unlimited access to the website including our premium content, as well as benefiting from fewer ads, loyalty rewards and much more. The event was hosted by PSPA, the only UK charity dedicated to supporting families affected by PSP & CBD; rare neurodegenerative conditions that over time cause problems with balance, mobility, speech, swallowing and cognition. Currently there is no treatment and no cure available.
As rare conditions, families affected by PSP & CBD can be left feeling isolated, fearful and overwhelmed. As well as providing regional support groups, PSPA also hosts two Family and Friends Day events in the UK each year to help bring families together for support and information. Carol Amirghiasvand, PSPA Director of Service Improvement and development, said: “Our surveys of people living with PSP & CBD have shown that more than 90% had not heard of PSP or CBD before the.
